Tuesday, April 21, 2009

If you're ok, I'm ok.

The nurses that had Emma-Sky and Lucian were all business last night. And that's me being nice. They made us feel like we were almost in their way or inconveniencing them somehow. I was uncomfortable to say the least and not getting straight answers when I asked them. Needless to say I was a bit frustrated and exhausted last night. Most importantly they are both doing well. Lucian remains extubated and is only on 21% oxygen (the minimum setting). Emma-Sky is on a different type of machine because her nostrils were irritated and they wanted to give her a break. She was at 29% oxygen which is the highest we've ever seen her at. I asked why it was up so high and was told "she was at 30% when I came on this shift, we can't have her where we'd like her to be we have to support her as we see she needs it.... or it could be that this type of support has more leakage than the one she had going directly into her nose." I caught myself biting the inside of my cheek, arms crossed. So it could be that's what she needs... or it could be that this nasal cannula just allows for more leakage so we have to compensate for that. I know that we can't leave her on settings that don't give her what she needs, and that would never be my preference, my question was why did she need more all of a sudden. 21 or 23% is a lot different than practically 30. At any rate, Emma had a bath while we were there and they took her out of the isolette completely uncovered. It was the first time we'd seen her so exposed, her little head and all. Both of her eyes were wide open, in an almost what's going on expression. The hours are long between being there and being home. The worry sometimes builds up and sometimes I feel like crying because we're seperated, because I don't know if I'm doing enough. I feel bad when I'm tired or don't feel like pumping when really that's all I can contribute. I worry that Adam's overwhelmed or that Gina needs things I can't give her right now. All I can do is hope that giving my all to those I love will be good enough. When I was in the hospital before we had the babies, Adam told me on more than one occasion, "If you're ok, I'm ok." And that's how we've always felt.

It's funny how circumstances such as these truly bring out the best in others. We have had many encouraging words and love sent our way and we're very grateful for that. Family, friends, the people we're so lucky to work with, even people I went to high school with and haven't spoken to in 10 years (senior year of high school was ten years ago, how scary is that!) have said very touching things that I will hold onto and re-read. Just offering to help means more to us than you can know.

3 comments:

  1. Jane and Adam - Make sure that you continue to take care of yourselves and each other -- you both need to be strong and healthy for Emma-Sky and Lucian.
    Remember Jane - "it's the one's you can call on in the middle of the night" -- and you have a lot of them... so use us if there is anything we can do.

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  2. Jane, sweetheart, keep your spirits high and all energy focused on those beautiful babies...There are so many people around you that can lend a helping hand....Don't worry about anything but getting those babies home...I hope Gina is being a help to you,,,,you know she can come to me anytime..Just give me a call and I will take her. Love you guys..the children and myself are now going to say a prayer to our "Lil Elizabeth", who is the best Guardian Angel around...God Bless and remember we love you...xoxoxoxo

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  3. Jane and Adam,

    You both are such an inspiration to so many people. These are not just your children, they have become a piece of all of us. Everyday I find myself rushing home to see the updates and counting the days until my little cousins come home. Your undying love and devotation to these beautiful angels has touched me and so many others in such a special way.

    You both are two very special people and want to thank you for opening your lives to us all.

    Jane, I look forward to the moment when I finally meet the woman who made my cousin so happy.

    Adam, you already know how much I love you and will ALWAYS be here for you all...

    Love,

    Cousin Kim

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